Blog
Embracing the Unexpected and Finding Blessings
Living with a genetic rare disease is an ongoing journey of challenges, resilience, and unexpected turns. My own experience with Fibrous Dysplasia McCune-Albright Syndrome (FD/MAS) has been proof to the unpredictability and complexity that come with such conditions. It’s a path marked by constant care, unexpected surgeries, and enduring pain, yet it’s also a journey
Laura Cowell
22 June 2024